Tag Archives: blindness

Register Now! Blind Health Expo 2024 Friday, December 6 10:00AM to 4:00PM Eastern Time

Register Now! Blind Health Expo 2024 Friday, December 6 10:00AM to 4:00PM Eastern Time

Join us for the 3rd annual Blind Health Expo! The Blind Health Expo is the world’s largest virtual expo of healthcare information, products, and services for individuals, organizations, and companies in the health, blindness, and disability communities.

Information for Attendees:

  • FREE to attend
  • 100% virtual
  • Hundreds of exhibitors!
  • Vision Healthcare Awards 2024

Learn and discuss with companies and organizations. Click here to register to attend.

For more information, please click here about Blind Health Expo 2024.

Blindness and Mental Health Summit

Thank you for joining us at the Blindness and Mental Health Summit! Please click the link below for the recording, a copy of the transcript, and resources from our speakers and exhibitors.

Click here for Recordings and Resources

If you have any questions, please send us an email.

Sincerely,
Your friends at Accessible Pharmacy

Accessible Pharmacy Services, LLC

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1-888-633-7007

Blindness and Prevention of Diabetes

Register Now! Blind Health Expo 2024 Friday, December 6 10:00AM to 4:00PM Eastern Time

Program Registration Now Open for Medicare and Medicare

Advantage Beneficiaries

Do you have Medicare or Medicare Advantage? Join the Diabetes Prevention Program (DPP) to get healthy and avoid type 2 diabetes! Our courses are taught by two diabetes lifestyle coaches who are blind and one diabetes lifestyle coach who teaches the course in American Sign Language. Program is free for Medicare and Medicare Advantage beneficiaries and 100% virtual. Fill out the form below or send us an email to get started.

Available in:

  • Alabama
  • Connecticut
  • Delaware
  • Florida
  • Georgia
  • Illinois
  • Kentucky
  • Maine
  • Maryland
  • Massachusetts
  • New Jersey
  • New York
  • Ohio
  • Pennsylvania
  • Rhode Island
  • South Carolina
  • Virginia
  • West Virginia

Overview:

  • Year-long program
  • 100% virtual
  • Learn to identify and address barriers to healthy eating and physical activity through weekly peer sessions

Coming Soon! Diabetes Management Program

While this program is for individuals with pre-diabetes, we are currently building a Diabetes Management Program for individuals diagnosed with type 2 diabetes. Continue to fill out the form below if you are interested and we will get back to you with more information!

Click the link below, or send us an email to get started:

CLICK HERE TO GET STARTED

NFB-NEWSLINE® A FREE service for those who are unable to read Newsprint!

NFB-NEWSLINE®

It’s more than news—access a world of content in this free audio and Braille service for blind and print-disabled people.
NFB-NEWSLINE® is a free audio news service for anyone who is blind, low-vision, deafblind, or otherwise print-disabled that offers access to more than 500 publications, emergency weather alerts, job listings, and more.

Access Accounts and Content 

NFB-NEWSLINE now offers two types of accounts. The traditional full access account or a new limited access account

Content for NFB-NEWSLINE subscribers of the full access account:

  • National newspapers, including the Wall Street Journal and USA Today 
  • Breaking news sources, including CNN, BBC, and ESPN Online
  • International newspapers, including Financial Times and Vancouver Sun 
  • Magazines, including Time, Consumer Reports, Guideposts, and Smithsonian 
  • State newspapers
  • Emergency weather alerts and seven-day forecasts localized to your zip code or GPS location
  • The information that scrolls along the bottom of your television screen during emergency alerts
  • More than 100,000 job listings from two national job sources
  • TV listings localized to your zip code and provider
  • Retail ads
  • NFB’s national channel, including the ebook Building the Lives We Want, the Braille Monitor, Future Reflections, and presidential releases

NEW: NFB-NEWSLINE now offers a limited access account for children 

NFB-NEWSLINE is a valuable resource for blind children to access content for leisure or educational purposes. The NFB-NEWSLINE limited access account provides a restricted level of publications and content.  It is a structured set of materials and features recommended for children twelve years old and under. Currently, the limited access account type can only be accessed via the touch-tone phone access method.

Content for Subscribers of the NFB-NEWSLINE Limited Access Account:

  • National Federation of the Blind Channel
  • Their state specific local channel
  • State publications, including their state newspapers
  • Animal Tales
  • Girl’s Life
  • Highlights
  • J-14
  • National Geographic for Kids
  • Stone Soup
  • Additional services: retail ads, TV listings, job listings

With the start of the new limited access account, NFB-NEWSLINE now requires parents of subscribers under the age of 18 to complete the account setup process. The parent must select which type of account, either full or limited access (including the Kids Reading Corner), they want their child to have. Parents can change the type of their child’s account at any time. When their child turns 18 years old, the parent will need to contact NFB-NEWSLINE to have the child’s account switched to the full access account.

Special Coverage COVID-19 Information 

Get up-to-date COVID-19 information to all eligible subscribers. COVID-19 updates are available in the Breaking News category of NFB-NEWSLINE. This information is being obtained by the system searching the forty-four publications in the Breaking News category for “coronavirus” and displaying the results.

Access the COVID-19 updates using the telephone by pressing 5 from the main menu, then pressing 1 for the Breaking News category, followed by pressing 1 again which will bring you to the virus information. If you are using the NFB-NEWSLINE mobile app, look for the virus information under the All Publications section. The content can be accessed with Braille devices such as notetakers and refreshable Braille displays.

How to Sign Up for NFB-NEWSLINE

Anyone who cannot read printed publications due to vision loss, dyslexia, or a physical disability is eligible to receive NFB-NEWSLINE. Please register by calling your state’s Library for the Blind and Print-Disabled or the National Federation of the Blind at 866-504-7300 to request an application. You may also download and mail an application or complete our online application. After your registration is processed, you will receive a message containing your activation codes and instructions.

Ways to Access NFB-NEWSLINE

A man sits in a chair holding an iPad and listens to NFB-NEWSLINE with headphones.After you sign up for NFB-NEWSLINE, you will be able to access it in any of the following ways. If you are a current subscriber, you do not need to create a new account or obtain new codes to use additional methods. Your current codes will allow you to access NFB-NEWSLINE using any method you choose. If you’ve forgotten your codes, please call us for assistance.

iOS Mobile App 3.0 with KNFB Reader Basic

NFB-NEWSLINE Mobile includes these features and much more:

  • KNFB Reader Basic, a free version of KNFB Reader with the core functions necessary to quickly scan any printed text – just point, shoot, and read
  • The ability to share articles from publications in the breaking news category to social media channels
  • Multiple customization options to organize, save, and manage both NFB-NEWSLINE content and documents scanned with KNFB Reader Basic

NFB-NEWSLINE Mobile 3.0 is fully accessible with VoiceOver so that users can hear content read aloud or read it in Braille with a connected refreshable Braille display or notetaker, making the app ideal for blind and deafblind users.

Phone

  • Access NFB-NEWSLINE through your phone with the touch of a few buttons
  • Create your own favorites list, skip articles or sections, and repeat items you wish to re-read
  • Enable the continuous reading mode which allows you to start, stop, and skip articles
  • Alter the reading voice by changing the volume, speed, and pitch

For more information, please visit our NFB-NEWSLINE phone instructions page.

Amazon Alexa

  • Access NFB-NEWSLINE hands-free on any Amazon Alexa product, including Echo and Echo Dot
  • Alter the reading voice by changing the volume, speed, and the voice itself
  • Use dozens of voice commands to navigate to sections and articles that interest you

Learn more about the Amazon Alexa family of devices and enable the NFB-NEWSLINE Alexa skill today. For more information, please visit our Alexa instructions page or check out our training video on YouTube.

iOS Mobile App

  • Access NFB-NEWSLINE on your iPhone, iPod, or iPad
  • Global search function allows you to find articles on specific topics
  • Immediate access to breaking news stories

Download the free “NFB-NEWSLINE Mobile” app in the Apple App Store.

Website

  • Access NFB-NEWSLINE on a secure, text-only website that is screen-reader friendly
  • Easily navigate and search every available publication
  • Email a full publication, a section, or single article to your inbox

Visit nfbnewslineonline.org to access NFB-NEWSLINE online.

Email

  • NFB-NEWSLINE can email your news, customized job listings, and information directly to your inbox
  • Provide us with an email address, choose your favorites, and select frequency (once daily or updates throughout the day)

Please call us at 1-866-504-7300 to set up your NFB-NEWSLINE email service.

Portable Players

  • Access NFB-NEWSLINE through many popular digital talking book players
  • Portable, plug and play, wireless download for Victor Reader Stream 2nd Generation
  • Easily navigate sections and articles with the use of DAISY-standard formatting

Visit nfbnewslineonline.org to learn more.

More Information

For more information, please call us at 866-504-7300 or 410-659-9314, extension 2317, or email us at nfbnewsline@nfb.org.

What is visual impairment?

The definition of vision impairment by the Centers for Disease Control and Prevention (CDC) says a visually impaired person’s eyesight cannot be corrected to a “normal level”.

It may be said that visual impairment is the functional limitation of the eye or eyes or the vision system. This leads to (1-5) –

  • Loss of visual acuity and inability of the person to see objects as clearly as a healthy person
  • Loss of visual field meaning inability of an individual to see as wide an area as the average person without moving the eyes or turning the head.
  • Photophobia – inability to look at light
  • Diplopia – double vision
  • Visual distortion or distortion of images
  • Visual perceptual difficulties or difficulties of perception
  • Or any combination of the above features

Low visual acuity

The CDC and the World Health Organization suggest that low visual acuity means vision between 20/70 and 20/400 with the best possible correction, or a visual field of 20 degrees or less.

Blindness

Blindness is defined as a visual acuity worse than 20/400 with the best possible correction, or a visual field of 10 degrees or less.

Legal blindness in the US means visual acuity of 20/200 or worse with the best possible correction, or a visual field of 20 degrees or less. (1)

Measuring visual acuity

Visual acuity is measured by use of a Snellen’s chart.

The chart consists of random letters and numbers of various sizes set at a distance of 6 feet.

The best possible vision if 6/6. Visual field is the width of the vision without moving or turning the head. It is measured in degrees.

Causes of vision impairment

Vision may be impaired due to multiple reasons. These could be due to eye damage, failure of the brain to receive and read the visual cues sent by the eyes etc.

Underlying diseases may also cause visual impairment. The commonest cause is diabetic retinopathy, age-related macular degeneration, formation of cataracts and raised pressure within the eyes leading to glaucoma.

Who does visual impairment affect?

Although impairment of vision can occur at any point in life, it is more common among the elderly.

Sometimes visual impairment may be inherited. It manifests at birth or in childhood in such cases.

Common conditions are retinitis pigmentosa, genetic or developmental abnormalities etc.

These children with partial or complete impairment are often developmentally delayed especially in gross and fine motor skills. Visually impaired adults struggle with gainful employment and day to day activities. (1-5)

How many people are visually impaired?

Some estimates suggest the approximately 10 million people in the United States are blind or visually impaired.

Some sources suggest that one million adults over the age of 40 are blind, and 2.4 million are visually impaired.

It is estimated that as the elderly population swells over the years, the number of adults with vision impairments is expected to double.

Figures also show that only 46% of working-age adults have vision impairments and 32% of legally blind adults of working age are gainfully employed. (1-5)

Further Reading

Last Updated: Jun 7, 2023

 

Blindness and vision impairment

World Health Organization Logo

Boys sitting at their desk in a classroom

Key facts

  • Globally, at least 2.2 billion people have a near or distance vision impairment. In at least 1 billion of these, vision impairment could have been prevented or is yet to be addressed.
  • The leading causes of vision impairment and blindness at a global level are refractive errors and cataracts.
  • It is estimated that globally only 36% of people with a distance vision impairment due to refractive error and only 17% of people with vision impairment due to cataract have received access to an appropriate intervention.
  • Vision impairment poses an enormous global financial burden, with the annual global cost of productivity estimated to be US$ 411 billion.
  • Vision loss can affect people of all ages; however, most people with vision impairment and blindness are over the age of 50 years.

Overview

Vision, the most dominant of our senses, plays a critical role in every facet and stage of our lives. We take vision for granted, but without vision, we struggle to learn, to walk, to read, to participate in school and to work.

Vision impairment occurs when an eye condition affects the visual system and its vision functions. Everyone, if they live long enough, will experience at least one eye condition in their lifetime that will require appropriate care.

Vision impairment has serious consequences for the individual across the life course. Many of these consequences can be mitigated by timely access to quality eye care. Eye conditions that can cause vision impairment and blindness – such as cataract or refractive error – are, for good reasons, the main focus of eye care strategies; nevertheless, the importance of eye conditions that do not typically cause vision impairment – such as dry eye or conjunctivitis – must not be overlooked. These conditions are frequently among the leading reasons for presentation to eye care services.

Causes

Globally, the leading causes of vision impairment and blindness are:

  • refractive errors
  • cataract
  • diabetic retinopathy
  • glaucoma
  • age-related macular degeneration.

There is substantial variation in the causes of vision impairment between and within countries according to the availability of eye care services, their affordability, and the education of the population. For example, the proportion of vision impairment attributable to unoperated cataract is higher in low- and middle-income countries. In high income countries, diseases such as glaucoma and age-related macular degeneration are more common.

Among children, congenital cataract is a leading cause of vision impairment in low-income countries, whereas in middle-income countries it is more likely to be retinopathy of prematurity.

Uncorrected refractive error remains a leading cause of vision impairment in all countries amongst children and adult populations.

Prevalence

Globally, at least 2.2 billion people have a near or distance vision impairment. In at least 1 billion – or almost half – of these cases, vision impairment could have been prevented or has yet to be addressed.

Among this 1 billion people, the main conditions causing distance vision impairment or blindness are cataract (94 million), refractive error (88.4 million), age-related macular degeneration (8 million), glaucoma (7.7 million), diabetic retinopathy (3.9 million) (1). The main condition causing near vision impairment is presbyopia (826 million) (2).

In terms of regional differences, the prevalence of distance vision impairment in low- and middle-income regions is estimated to be 4 times higher than in high-income regions (1). With regards to near vision, rates of unaddressed near vision impairment are estimated to be greater than 80% in western, eastern and central sub-Saharan Africa, while comparative rates in high-income regions of North America, Australasia, western Europe, and of Asia-Pacific are reported to be lower than 10% (2).

Population growth and ageing are expected to increase the risk that more people acquire vision impairment.

Impact of vision impairment

Personal impact

Young children with early onset irreversible severe vision impairment can experience delayed motor, language, emotional, social and cognitive development, with lifelong consequences. School-age children with vision impairment can also experience lower levels of educational achievement.

Vision impairment severely impacts quality of life among adult populations. Adults with vision impairment can experience lower rates of employment and higher rates of depression and anxiety.

In the case of older adults, vision impairment can contribute to social isolation, difficulty walking, a higher risk of falls and fractures, and a greater likelihood of early entry into nursing or care homes.

Economic impact

Vision impairment poses an enormous global financial burden with an estimate annual global productivity loss of about US$ 411 billion purchasing power parity (3). This figure far outweighs the estimated cost gap of addressing the unmet need of vision impairment (estimated at about US$ 25 billion).

Strategies to address eye conditions to avoid vision impairment

There are effective interventions covering promotion, prevention, treatment and rehabilitation which address the needs associated with eye conditions and vision impairment. While many vision loss cases can be prevented (such as those due to infections, trauma, unsafe traditional medicines, perinatal diseases, nutrition-related diseases, unsafe use or self-administration of topical treatment), this is not possible for all. For many eye conditions, e.g. diabetic retinopathy, early detection and timely treatment are crucial to avoid irreversible vision loss. Spectacle correction for refractive error and surgery for cataract are among the most cost-effective of all health-care interventions. Yet, globally only 36% of people with a distance vision impairment due to refractive error have received access to an appropriate pair of spectacles and only 17% of people with vision impairment or blindness due to cataract have received access to quality surgery (5).

Treatment is also available for many eye conditions that do not typically cause vision impairment, such as dry eye, conjunctivitis and blepharitis, but generate discomfort and pain. Treatment of these conditions is directed at alleviating the symptoms and preventing the evolution towards more severe stages of those diseases.

Vision rehabilitation is very effective in improving functioning for people with an irreversible vision loss that can be caused by eye conditions such as diabetic retinopathy, glaucoma, consequences of trauma, and age-related macular degeneration.

WHO response

WHO’s work is guided by the recommendations of the WHO World report on vision (2019) and the resolution on “integrated, people-centred eye care, including preventable blindness and vision impairment” adopted at the Seventy-third World Health Assembly in 2020. The key proposal is to make integrated people-centred eye care (IPEC) the care model of choice and to ensure its widespread implementation. It is expected that by shaping the global agenda on vision and eye care, the report and resolution will assist Member States and their partners in their efforts to reduce the burden of eye conditions and vision.

Some of WHO’s key areas of work and activities in the prevention of blindness include:

  1. Working with Member States and other partners in the field to monitor the global targets for 2030 on integrated people-centred eye care:
  2. Observing and promoting World Sight Day as an annual advocacy event.
  3. Supporting the integration of eye care in health systems through the implementation of a series of technical tools:
  4. The development and implementation tools to support countries to assess the provision of eye care services such as:
    • The Eye care situation analysis tool
    • The Tool for the assessment of diabetic retinopathy and diabetes management services.
    • The Tool for the assessment of glaucoma services.
    • The Tool for the assessment of refractive services.
    • The Tool for the assessment of rehabilitation services and systems.
  5. The development of materials and resources to raise awareness on eye care:

 

References

1. GBD 2019 Blindness and Vision Impairment Collaborators; Vision Loss Expert Group of the Global Burden of Disease Study. Causes of blindness and vision impairment in 2020 and trends over 30 years, and prevalence of avoidable blindness in relation to VISION 2020: the Right to Sight: an analysis for the Global Burden of Disease Study. Lancet Glob Health. 2021 Feb;9(2):e144-e160. doi: 10.1016/S2214-109X(20)30489-7.

2. Fricke, TR, Tahhan N, Resnikoff S, Papas E, Burnett A, Suit MH, Naduvilath T, Naidoo K, Global Prevalence of Presbyopia and Vision Impairment from Uncorrected Presbyopia: Systematic Review, Meta-analysis, and Modelling, Ophthalmology. 2018 May 9.

3. Burton MJ, Ramke J, Marques AP, Bourne RR, Congdon N, Jones I, et al. The Lancet Global Health commission on Global Eye Health: vision beyond 2020. Lancet Glob Health. 2021; 9(4):e489–e551.

Historically Famous African Americans with Blindness or Visual Impairments

Blindness is the condition of lacking visual perception due to physiological and/or neurological factors.  Complete blindness is the total lack of form and light perception and is clinically recorded as “No Light Perception” or “NPL”.  Eye injuries, mostly occurring in people under 30, are the leading cause of monocular blindness (vision loss in one eye).  People who are blind or visually impaired have devised a number of techniques that allow them to complete daily activities using their remaining senses and recently created accessible technology such as screen reading software enables visually impaired people to use mainstream computer applications including the Internet.  Listed below are historically famous people with visual impairments including total blindness, sight conditions, or blindness in one eye.

 

Harriet Tubman posing for photo with hands crossedHarriet Tubman (c. “in approximately” 1820 – March 10, 1913):  Harriet Tubman was a slave throughout her youth, being treated as an animal until she eventually escaped captivity.  She was an abolitionist, humanitarian, and Union spy during the American Civil War.  When she had reached Canada she did not stay to enjoy her freedom.  She returned to the lands and brought hundreds of black slaves back to safety, saving them from slavery by escaping in what was then called The Underground Railroad.  After a severe wound to the head, which was inflicted by a slave owner before her escape, she became a victim to vision impairment and seizures.  That did not keep her from tossing her fears aside and to keep fighting for the freedom of her people.

 

Ray Charles playing the pianoRay Charles (September 23, 1930 – June 10, 2004):  Known by his stage name Ray Charles, he was an American pianist and musician who shaped the sound of rhythm and blues.  He brought a soulful sound to country music, pop standards, and a rendition of “America the Beautiful” that Ed Bradley of 60 Minutes called the “definitive version of the song, an American anthem.”  In 1965, Charles was arrested for possession of heroin, a drug to which he had been addicted for nearly 20 years.  It was his third arrest for the offense, but he avoided jail time after kicking the habit in a clinic in Los Angeles.  He spent a year on parole in 1966.  Ray also appeared in the 1980 hit movie, The Blues Brothers and Frank Sinatra called him “the only true genius in the business.”  In 2004, Rolling Stone Magazine ranked Charles number ten on their list of the 100 Greatest Artists of All Time and also voted him number two on their list of The 100 Greatest Singers of All Time.

 

Stevie Wonder wearing dark sun glasses smilingStevie Wonder (May 13, 1950 – Present):  Born Steveland Hardaway Judkins, he later changed his name to Steveland Hardaway Morris.  Wonder is an American singer-songwriter, multi-instrumentalist, and record producer.  Blind from infancy, Wonder signed with Motown Records as a pre-adolescent at the age of twelve, and continues to perform and record for the label to this day.  It is thought that he received excessive oxygen in his incubator which led to retinopathy of prematurity, a destructive ocular disorder affecting the retina.  It is characterized by abnormal growth of blood vessels, scarring, and sometimes retinal detachment.  A prominent figure in popular music during the latter half of the 20th century, Wonder has recorded more than thirty U.S. top ten hits and won twenty-two Grammy Awards (the most ever won by a solo artist) as well as a Lifetime Achievement Award.  He has also won an Academy Award for Best Song, and been inducted into both the Rock and Roll and Songwriters halls of fame.  He has also been awarded the Polar Music Prize. American music magazine Rolling Stone named the ninth greatest singer of all time.

 

Rahsaan Roland Kirk playing 4 wind instruments at the same timeRahsaan Roland Kirk (August 7, 1936 – December 5, 1977):  Rahsaan was an American jazz multi-instrumentalist, playing tenor saxophone, flute and other reed instruments.  He was perhaps best known for his vitality on stage, where virtuoso improvisation was accompanied by comic banter, political ranting and his famous ability to play a number of instruments simultaneously.  Kirk was also very political, using the stage to talk on black history, civil rights and other issues, which he was always capable of tipping over into high comedy.  He went blind at an early age due to poor medical treatment.

 

Al Hibbler posing for a photo with dark wearing dark tinted glassesAl Hibbler (August 16, 1915 – April 24, 2001):  Hibber was an American vocalist with several pop hits. He is best known for his million selling recording of “Unchained Melody” (1955).  He achieved national prominence in the United States with the Ellington orchestra in the mid 1940s, and went on to build a substantial career, which included continuing involvement with jazz musicians.  Born Albert George Hibbler in Tyro, Mississippi, he was blind from birth. Hibbler attended a school for the blind in Little Rock, Arkansas where he joined the school choir.  He won an amateur talent contest in Memphis, Tennessee, where he first worked with local bands and started his own band.  He died in Chicago in 2001, at the age of 85.  He was survived by a sister and a brother.  Hibbler has a star at 1650 Vine Street on the Hollywood Walk of Fame.

 

William Samuel McTell sitting on a stool playing an acoustic guitarWilliam Samuel McTell (May 5, 1898 – August 19, 1959):  Better known as Blind Willie McTell, he was an influential American blues singer, songwriter, and guitarist.  He was a twelve-string finger picking Piedmont blues guitarist, and recorded 149 songs between 1927 and 1956.  Born William Samuel McTier in Thomson, Georgia, blind in one eye, McTell had lost his remaining vision by late childhood, but became an adept reader of Braille.  He showed proficiency in music from an early age and learned to play the six-string guitar as soon as he could.  A blues festival in McTell’s honor is held annually in his birthplace, Thomson, Georgia.  He was inducted into the Blues Foundation’s Hall of Fame in 1981.

 

Clarence Carter singing into a microphone while playing electric guitarClarence Carter (January 14, 1936 – Present):  Clarence is a blind American soul singer and musician.  Born in Montgomery, Alabama on 14 January, 1936, Carter attended the Alabama School for the Blind in Talladega, Alabama, and Alabama State College in Montgomery, graduating in August 1960 with a Bachelor of Science degree in music.

 

 

David Alexander Paterson making a speech in front of a podium with American flags in the backgroundDavid Alexander Paterson (May 20, 1954 – Present): American politician and the former Governor of New York. He is the first African American governor of New York and also the second legally blind governor of any U.S. state after Bob C. Riley, who was Governor of Arkansas for eleven days in January 1975. At the age of three months, Paterson contracted an ear infection which spread to his optic nerve, leaving him with no sight in his left eye and severely limited vision in his right eye.

 

 

Study Uncovers How Blind and Visually Impaired Individuals Navigate Social Challenges

Man sitting on a couch wearing sun glasses, holding a white walking cane
Man sitting on a couch wearing sun glasses, holding a white walking cane
Photo credit: Mina Miroshnichenko.

A recent study highlights the range of uncomfortable situations people living with blindness or visual impairment encounter due to interpersonal communication challenges, and outlines strategies people with visual impairment use to navigate these situations.

“This work validates the lived experiences of people with visual impairment,” says Lynsey Romo, corresponding author of the study and an associate professor of communication at North Carolina State University. “It also provides tangible ways blind and visually impaired individuals, as well as sighted people, can use communication to create more positive social interactions.”

“I’ve encountered countless instances of uncomfortable interactions with others, but the turning point for me was when I brought my guide dog to the vet and she talked to my driver as if I weren’t in the room,” says study co-author Melissa Taussig, a mental health professional with a lifelong visual impairment. “That visit was the catalyst for me to collaborate with Lynsey to explore how other people living with blindness or visual impairment navigate these circumstances.”

For this qualitative study, the researchers conducted in-depth interviews with 24 adults in the United States who are living with blindness or visual impairment. The interviews focused on social interactions, feelings of stigma and uncertainty, and techniques interviewees developed for managing these social interactions.

“We found uncomfortable social interactions are inherently part of living with blindness,” Taussig says. “Blind and visually impaired individuals can miss visual cues that sighted people take for granted. And people often don’t know how or whether to speak directly to us.”

“These interactions can be awkward because people with visual impairment often have to ask for help with day-to-day tasks, like getting a ride to the store or finding the elevator in an unfamiliar building,” says Romo. “Such requests may be awkward for sighted people who have differing degrees of awareness or experience with the blind community. Some may want to help but don’t know how. Others have good intentions but end up overstepping.”

Study participants also commonly reported feelings of shame and isolation related to their blindness, which was often reinforced by the uncomfortable nature of many of their social interactions.

“We want people living with blindness to know that they are not alone in feeling this way,” Taussig says. “There’s nothing wrong with them, and many of us living with visual impairment share these experiences. Fortunately, we found strategies people with visual impairment effectively use to navigate social interactions with sighted people.”

Strategies generally fell into two categories: reducing the likelihood of having an awkward encounter and recovering from an awkward encounter.

Examples of techniques for avoiding awkward encounters included:

  • Disclose blindness: “Some participants found it helpful to disclose their blindness clearly and succinctly at the beginning of an encounter to reduce uncertainty and accomplish specific goals,” Romo says. “For example, one study participant talked about opening a conversation by saying ‘I’m blind and could use some help finding this address.’”

“Disclosing blindness can be emotionally exhausting because we’re often tasked with explaining ourselves to others, but it does help us get access to resources that we wouldn’t otherwise have,” says Taussig.

  • Use nonverbal cues: Researchers found guide dogs and canes can serve as a nonverbal indication that someone is blind, and guide dogs in particular often serve as a social bridge to others.
  • Be polite: Participants said interactions went more smoothly when they used certain phrases. For example, adding a “please” before a request, saying thank you, or asking “would you mind giving me a ride when you get a chance” made helpers feel more appreciated while accomplishing visually impaired individuals’ goals.

Examples of ways to recover from awkward encounters included:

  • Humor: Humor involved self-deprecation and jokes, for instance, calling oneself a “blind girl” or joking, “Is it buy five operations, get one free?” to a surgeon prior to one participant’s sixth eye operation.
  • Education: Some participants talked about educating sighted people with explanations on what their cane was for or tips on how to talk to blind or visually impaired people.
  • Advocacy: Some participants talked about advocating for their rights and the rights of other people living with blindness or visual impairment. For example, informing restaurants and ride share services about illegal practices (such as refusing service to someone with a guide dog) in order to combat structural barriers.

The researchers also drew on the study to outline constructive ways allies can support people with visual impairment.

  • Offer help directly and specifically: “For example, allies will often say, ‘Let me know if you need something from the store,’” Taussig says. “That’s a really kind thing to say, but it can create anxiety for people with blindness to ask for help. It’s much more helpful to say something like ‘I’m going to the store, what can I pick up for you?’ or ‘I’m going to the store, would you like to come?’ This approach feels more like an invitation and can alleviate the fear of being a burden.”
  • Introduce yourself: “Another easy thing that allies can do is introduce themselves when meeting with a person who is blind – say your name when you walk up,” Romo says. “People often forget that those with visual impairment can’t recognize their face, and people with visual impairment may not recognize an individual based on their voice alone. They also may not see your wave, so sighted people shouldn’t be offended.”
  • Hands off: “It important to not touch someone who is blind – or pet their guide dog – without their permission,” Taussig says. “It’s much better to explicitly ask whether a person who is blind needs help crossing the street or if they’d like help in some other way.”

“Conducting this study underscores how little research is out there on the lived experiences of people with visual impairment and the challenges they face in navigating social situations,” Romo says. “Based on our interviews, even people living with blindness know very little about how common their experiences are.”

The study, “An examination of visually impaired individuals’ communicative negotiation of face threats,” is published in the Journal of Social and Personal Relationships. The paper was co-authored by Cimmiaron Alvarez of Rutgers University. The work was made possible by funding from NC State’s College of Humanities and Social Sciences.

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Note to Editors: The study abstract follows.

“An examination of visually impaired individuals’ communicative negotiation of face threats”

Authors: Lynsey K. Romo, North Carolina State University; Cimmiaron Alvarez, Rutgers University; and Melissa R. Taussig

Published: July 7, Journal of Social and Personal Relationships

DOI: 10.1177/02654075221114048

Abstract: Being visually impaired is an inherently face threatening and potentially stigmatizing experience that can greatly affect personal relationships. Those with a visual impairment frequently miss nonverbal cues, must rely on others for transportation and other assistance, and can be overtly marked as different through their use of a cane or a guide dog. Framed by the theoretical lens of facework and using in-depth interviews of 24 visually impaired individuals, this study uncovered how people with a visual impairment engaged in facework to mitigate and remediate the low-vision-related face threats they and others experienced. Participants reported using preventive facework, including politeness and humor, as well as corrective facework (avoidance, apologies, accounts, and humor) to manage face threats. Interviewees also engaged in a new type of facework that was simultaneously corrective and preventive: future facework (education and advocacy). Findings offer practical strategies visually impaired individuals can use to ward off or repair face threatening acts, contesting stigma and potentially improving relationships and fostering allyship among sighted individuals. The study also suggests that facework be incorporated into a biopsychosocial model of disability to help combat disabling social barriers.


For Immediate Release

Lynsey Romo